Thalassaemia is the name of a group of genetic inherited disorders of the blood. Thalassemia is a disorder of the blood in which a child is born with inability to form normal Hemoglobin. This is so serious that unless the child receives blood transfusion every 2 to 3 weeks it can be life threatening by the age of 5 years of age.
More specifically, it is a disorder of the haemoglobin molecule inside the red blood cells. It is an inherited genetic disease, i.e. a disease that is passed from parents to children through the genes. It is not infectious and cannot be passed on from one individual to another by personal or any other contact, through blood transfusion, food or air.
Thalassemia “ is a genetic blood disease , in which all the patients have to undergo blood transfusion once in 21 days for keeping up their Hemoglobin count.
And they need medicines to the tune of Rs.3000/- per month and the only cure to them is “Stem Cell Therapy” or Bone Marrow Transplantation which will cost around Rs.8,00,000/- ( Eight Lakhs ) .
Unfortunately there are around 42 Children undergoing regular treatment ( Blood Transfusion ) in Madurai Government Rajaji Hospital and they are from economically downtrodden families who cant buy medicines for their children.
The medicines are not supplied by Tamilnadu Govt. and most of the children are without medication for a long time.
In this regards, we requested various organization and Freemasons club Lodge Meenakshi, Madurai have started donating Medicines to them from this month.
We have arranged for a Specialist Doctor from Apollo Hospital , Chennai and they made a visit and examined all the children on Sep 5th 2009 in GH itself.
As a further measure , we have requested Dr.Lawrence William Faulkner of Italy who is a leading Paediatric Haemato Oncologist with more than twenty years experience in Thalassemia treatment and care and he will be visiting Madurai on Jan 15th and will be here till Jan 17th to assist us in evaluating the thalassemia children for further treatment.
We request you to join us in this mission to help the poor children free of their miseries.
Do create awareness about the disease , donate for medicines , donate blood or you can sponsor a child for the Bone Marrow Transplantation either alone or as a group.
Do visit our website : www.thalassemiafreeindia.ning.com
Do send this message to all your friends and relatives,