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Support poor children free from Thalassemia
by nivethan.mdu on Jan 01, 2010 Category: Health & Disability Tags: india children support thalassemia chelation nivethan
Thalassaemia is the name of a group of genetic inherited disorders of the blood. Thalassemia is a disorder of the blood in which a child is born with inability to form normal Hemoglobin. This is so serious that unless the child receives blood transfusion every 2 to 3 weeks it can be life threatening by the age of 5 years of age.
More specifically, it is a disorder of the haemoglobin molecule inside the red blood cells. It is an inherited genetic disease, i.e. a disease that is passed from parents to children through the genes. It is not infectious and cannot be passed on from one individual to another by personal or any other contact, through blood transfusion, food or air.
An Appeal
Thalassemia “ is a genetic blood disease , in which all the patients have to undergo blood transfusion once in 21 days for keeping up their Hemoglobin count.
And they need medicines to the tune of Rs.3000/- per month and the only cure to them is “Stem Cell Therapy” or Bone Marrow Transplantation which will cost around Rs.8,00,000/- ( Eight Lakhs ) .
Unfortunately there are around 42 Children undergoing regular treatment ( Blood Transfusion ) in Madurai Government Rajaji Hospital and they are from economically downtrodden families who cant buy medicines for their children.
The medicines are not supplied by Tamilnadu Govt. and most of the children are without medication for a long time.
In this regards, we requested various organization and Freemasons club Lodge Meenakshi, Madurai have started donating Medicines to them from this month.
We have arranged for a Specialist Doctor from Apollo Hospital , Chennai and they made a visit and examined all the children on Sep 5th 2009 in GH itself.
As a further measure , we have requested Dr.Lawrence William Faulkner of Italy who is a leading Paediatric Haemato Oncologist with more than twenty years experience in Thalassemia treatment and care and he will be visiting Madurai on Jan 15th and will be here till Jan 17th to assist us in evaluating the thalassemia children for further treatment.
We request you to join us in this mission to help the poor children free of their miseries.
Do create awareness about the disease , donate for medicines , donate blood or you can sponsor a child for the Bone Marrow Transplantation either alone or as a group.
Do visit our website : www.thalassemiafreeindia.ning.com
Do send this message to all your friends and relatives,
For your participation and donations contact :
Nivethan Trust- Madurai, TamilNadu, India
Email: nivethan.mdu@gmail.com or visit www.nivethan.org
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Dear Sir,
I am writing on behalf of poor family in J&K , whose children is suffering from Thalessemia from past 2 years
his mother is hails from poor family and is unable to bear the cost on expendture for his treatment.
I request you to Help the por lady to save the life of his child.
He is staying at 112 , Anand Nagar Tablab Tillo- JJammu
Jammu and Kashmir
Regards
SANJEEV
Hi Sanjeev,
How does one get more information? What is the amount they need help with? Is any NGO or hospital helping them right now?
What's your email ID and their contact details?
Please share details if you want me to spread the word.
Thanks.
R/sir
My daughter Quraishi Ashmira Kausar, age 21 month, is affected with a very
serious and indeed, a very rare disease called
"THALESSEMIA MAJOR" where in the body is unable to produce normal
blood.
The only cure for this disease is "UMBILICAL CORD BLOOD TRANSPLANT". In
India the best center for GRANT MEDICAL FOUNDATION RUBY HALL CLINIC,
PUNE (M.S.) INDIA. The estimated cost as per enclosed details is Rs.
22.5 Lakhs approximately which is beyond my reach.
May i therefore, take the liberty of requesting you to contribute to
the extent possible, for this Life & Death Problem of my Daughter. Your
contribution will not only save a dear & precious life of an innocent
child, but will also, certainly turn the gloomy world of a family into
a bright one.
Needless to say, even a small gesture of good will from you, will be a
token of Love for Humanity.
Thanking you in anticipation & with warm regard.
Yours faithfully,
Israr Ahmed.
Note: Your willingness and the amount you wish to contribute can be
sent through Demand Drafts / Cheque favoring, 'GRANT MEDICAL
FOUNDATION' payable at Pune (M.S.) India.
Address:
Israr Ahmed S/o Basheer Ahmed.
Lane No.5, Rahmaniya Colony,
Kiradpura,
Aurangabad - 431001 (M.S.) India.
Mobile: +91 9890735689.
Email: fahadisrar@rediffmail.com
u all can search one organization "datri"..it may help u
dear samaritans,
I am serving in tura,a forlorn distict headquarter in meghalaya in the north-est of india. The daughter of a roadside vendor I know is afflicted with thalassemia major.The daily earning of the family is hardly 200 rupees per day and naturally they are at their wits end. They wish to take the child for a curative treatment. We at our end are trying to get sponsors. But can u help if we email the medical report of the child to you?
Pl.respond at the earliest
im wat sense u need help...if money..then u can contact trust like tata
I am working with verry poor childrin in my house 10 children are stay with us.and i am giving free educatin.but now a days iam suffaring for financial problams so could you help me?
where u r located.
am writing on behalf of poor family in south 24pgs , whose children is suffering from Thalessemia from past 2 years
his father is hails from poor family and is unable to bear the cost on expendture for his treatment.
I request you to Help the poor man to save the life of his child.
Regards
sudip
R/sir/madam
I m a student of degree 1st year,therefore I beg to state that one of my teachers, Mr. ZULKAFIL ALI AHMED is d grief striken father of little ANJUMAN ALAMIN,a THALASSEMIA MAJOR patient(5 yearts old). She ws sufferng frm d above mentioned disease since her birth & ws undergoing treatment. Bt now d case is refferd to CMC/VELLORE ,nw it is advised to undergo a BMT(BONE MARROW TRANSPLANTATION),which ud cost him approx 12,00,000/-,which may rise 20,00,000 for post transplantation complications. Therefore being a teacher of a private school ,it is nt possible for him to arrange dat huge sum,it is beyond his capacity. it will be a great relief for him if any NGO or INDIVIDUAL can help cntribute any amount to the girl Child's hospital a/c. If anyone is interested plz respond,I would post d acoount no.of CMC/VELLORE.
Dear sir,
I am writing on behalf of a poor family whose son is suffering from the rare disease name "Thallesimia".He need a blood in every 3 months & his blood group is O+.Now,they are unable to pay for his treatment.If you could support them,they will be always thankful to you.Please support them sir,they are in big money crunch now.His address is-
Mr. Ranjit Kumar Modi,
near govt. vidyalya,kurma Haat,
Dhoriya,Banka,Jharkhand-813224
and Mob. no. is-9096803464
sir we as a ngo i request you please help poor sc communities child suffering with major thalassemia dieses. his total family depend upon labour work at other community so they are n't capable to pay for this.
regard
Banas ngo
gujarat
9824765256/9428984745
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